I didn’t see that coming
New po this is a podcast for people interested in or suffering from optic neuritis and associated illnesses - but from a patient's prospect. When I started my journey with optic neuritis, there were very few resources on the Internet that could describe to me what I could expect both from the disease and the treatment and how it would feel. So this podcast is designed to fill that app.
I'm helped in each episode by my friend and collaborator Dr. Joanna Gould, who has a PhD neurology and helps explain some of the more difficult scientific topics.
They certainly isn't medical advice, but it's a medical experience that hopefully you can benefit from.
Contact us at boof@sighup.net.
Listen on:
Episodes
4 days ago
4 days ago
The first medical team were circling the drain around a diagnosis that didn't fit the evidence. On top of that the diagnosis they were pursuing was cancer. These two factors made me lunge for a second opinion.
This is the episode where we talk about the heroic folks in my new team who got to work fixing my vision - one symptom at a time.
7 days ago
7 days ago
Christmas and new year in hospital wasn't exactly part of my optimal plans, but then again nor was optic neuritis. It was all worth doing in the search of a diagnosis and so in this episode, we talk about that experience and what came after in the quest for figuring out what was the cause so we could then fix it.
Saturday Mar 21, 2026
Saturday Mar 21, 2026
This is the first of three episodes where we track the whole course from diagnosis to final treatment jump, jumping between a couple of hospitals and lots and lots of special specialists to find an answer. In this episode, we cover the initial diagnosis which fortunately turned out to be wrong and we discuss how to navigate the medical profession when it's not making its best judgments or decision decisions.
If you know anyone going through this, please pass this episode onto them. It could help a lot.
Wednesday Mar 11, 2026
Wednesday Mar 11, 2026
We talk about what optic neuritis is, where it comes from what its possible causes.
We also discuss some other advice about things that you should know from the outset and maybe some good habits you can develop from the beginning that will help you much much later on if the disease turns out to be not just a simple case.
Wednesday Mar 11, 2026
Wednesday Mar 11, 2026
A brief introduction to the podcast and the two presenters: Brendan Bouffler (the patient) and Dr Joanna Gould (our captive scientist).